Brain Tumour Research joins push for better neuro care

Thomas Brayford 2 min read
Brain Tumour Research is joining The Neurological Alliance and more than 10,000 voices from across the UK in calling for urgent Government action, following the findings of My Neuro Survey 2024 – the UK’s largest ever patient experience survey of people with neurological conditions.

The results paint a troubling picture: only one in three people says their healthcare needs are being met, and nearly half feel unsupported by the health system. Access to specialists remains a significant challenge, with over a quarter unable to see a neurologist or specialist nurse in the past year. Mental health support is alarmingly lacking, with 69% unable to access needed neuropsychiatry services.

Despite these failings, the survey reveals the positive impact of accessible, high-quality care. When people can access support, 72% feel comfortable with their clinicians and 57% report receiving clear information.

We cannot ignore the voices of more than 10,000 people who took part in this survey. The Government must act now for the one in six living with a neurological condition. We urgently need a workforce plan, proper funding, and implementation of national guidance. Lives – and quality of life – depend on it.

Brain Tumour Research urges everyone to sign the open letter to Secretary of State for Health and Social Care, Wes Streeting, and demand meaningful, immediate action.

Sign the open letter now and stand with the one in six.

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Thomas Brayford, Policy and Public Affairs Manager
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