On Tuesday (26th November), Brain Tumour Research provided the secretariat for a meeting of the All-Party Parliamentary Group (APPG) on Brain Tumours, bringing together politicians from across the political spectrum, patients and charity colleagues.
The meeting featured contributions from leading experts and stakeholders. Dr Matthew Hallsworth, Director of External Affairs and Strategic Partnerships at the National Institute for Health Research (NIHR), presented on the research funding process. This was followed by a lively question-and-answer session, where attendees raised vital questions about accessing funding and ensuring that the National Consortium on Brain Tumours delivers progress in a timely manner.
Dr Davide Danovi (pictured below), visiting senior lecturer at King’s College London and co-founder of Migration Therapeutics, shared his research on post-surgical strategies to create a ‘decoy nerve’. This innovative approach aims to improve outcomes for brain tumour patients.
The group also heard from Scott Arthur MP, who provided an update on his Private Members’ Bill. The proposed legislation seeks to incentivise pharmaceutical companies to invest in treatments for rare cancers. This could mark an important step towards fostering collaboration between public, charity and industry sectors; we look forward to supporting the development of this legislation.
Hugh Adams, Head of Stakeholder Relations at Brain Tumour Research, said: “The APPG on Brain Tumours has continued to be an invaluable platform for fostering discussions and identifying tangible ways to improve options for patients. Looking ahead, we are excited to continue working collaboratively to ensure the right processes are implemented to drive research output.
“As a charity, we remain steadfast in our commitment to ensuring that funding is being deployed and we will continue to make sure that the voices of the brain tumour community are heard.”
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Published Thursday 28th November 2024.