Rayhan Majid died on 7th April 2018, just four months after he was diagnosed with a high-grade medulloblastoma. Despite several surgical procedures, and radiotherapy, Rayhan’s tumour continued to grow and he passed away just after beginning chemotherapy treatment.
Now, his devastated parents Sarfraz and Nadia Majid are launching a Fundraising Group called Remembering Rayhan to raise vital funds and awareness to help find a cure for this devastating disease.
Nadia said: “Rayhan endured six weeks of radiotherapy and several harsh procedures and surgeries, one of which left him unable to speak or walk. He was on his first round of chemotherapy when he died. We were helpless and heartbroken as we watched our beautiful boy change from being once full of laughter and energy to becoming paralysed and unable to communicate or move.
“We don't feel angry that he died because we believe that was God's will and we were gifted with four-and-a-half years of a beautiful life with our Rayhan. However, we’re angry about all the head-shaking and negligence from the doctors and how long it took to get a diagnosis.
“We can’t reconcile the lack of basic awareness around his very obvious brain tumour symptoms, and the lack of availability around alternative treatment options. We would not wish other families to go through what we did. The treatment was almost as cruel as the disease itself and this cannot be right so any improvement for patients diagnosed in the future is long overdue.”
We are thinking of Rayhan’s family and loved ones today.
To support Remembering Rayhan, text RAYHAN to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message. Or you can donate online here and give your reason as Remembering Rayhan.
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