The parents of a schoolgirl who was prescribed Calpol months before she was diagnosed with brain cancer are urging people to sign our petition.
Indeg Glyn Roberts from Rhoshirwaen, North Wales, was just six when she was diagnosed with a grade 3 anaplastic ependymoma in November 2020. The shocking revelation came after months of vomiting, which doctors thought was caused by a virus.
Indeg had a nine-hour operation to remove the tumour, followed by two months of proton beam therapy. She is part of a research trial at Alder Hey called The International SIOP Ependymoma ll trial, which aims to improve the outcome of patients with ependymoma.
Sharing her story during Childhood Cancer Awareness Month, Indeg’s mum, Ceri, and dad, Huw, are urging people to support our petition. We are calling on the Government to ring-fence £110 million of current and new funding to kick-start an increase in the national investment in brain tumour research to £35 million a year by 2028
Ceri said: “As parents with a child living with brain cancer, we still have many unanswered questions such as: how long was Indeg’s tumour growing? How did it originate? What causes it to grow again?
“I know that many other patients and families will have the same. If we are to understand this disease, we must fund the research to find the answers.”