Useful Links

3 min read

We understand only too well that when you or a loved one is diagnosed with a brain tumour you are desperate for support and information.  The internet is full of information - some reliable, some misleading!  Here are some sites that we are aware of which may help you in your quest for knowledge.  We have divided them into sections to help you find what you are looking for.  Please contact us if you find other helpful sites so that we can include them too, or let us know if any of this information is out-of-date.

Brain Tumour Research Group Member Charities

Find out more about the various brain tumour charities from across the UK that are united with us under our national banner. Visit this page on our website.

Back to Support

Support Group Contact Details

Macmillan Centre

Royal United Hospital

Combe Park

Bath BA1 3NG

Quarterly


Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

 

Benjamin Zephaniah Room

The Exchange

3 Centenary Square
Birmingham, B1 2DR

Quarterly

Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

The Harold Club
393 New Works Road
Low Moor
Bradford
BD12 0UD 

Run by Yorkshire’s Brain Tumour Charity

Contact Shelley & Neil – ybtcsupport@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

More information can be found on their website 

www.braintumoursupport.co.uk 

or by phoning 01454 422701

or email 

support@braintumoursupport.co.uk

Macmillan Wellbeing Centre

Southmead Hospital

Southmead Road
Westbury-on-Trym

Bristol BS10 5NB

Quarterly

Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

The Acoustic Neuroma and Meningioma Network (AMNET)
Addenbrooke’s Hospital
Cambridge

For patients diagnosed with an acoustic neuroma or vestibular schwannoma brain tumour www.amnet-charity.org.uk

or call Alison Frank on 01953 860692

Maggie’s Cardiff

The Chris McGuigan Building

Velindre Centre

Cardiff

Wales CF14 2TQ

Monthly, usually first Friday of the month

Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

Cork University Hospital

Avril O’Sullivan - Patient Support Services Administrator

Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4

Ph: +353 1 2310533  
Fax: +353 1 2310555

Email: aosullivan@irishcancer.ie
Web: www.cancer.ie

Social Club
Walsgrave Hospital
Clifford Bridge Road Coventry

Monthly

Open to all patients diagnosed with a brain tumour, and families, friends.

Contact Ian Edwards on
02476 965 326

Café Nero, 43-45 St.
Sepulchre Gate
Doncaster
DN1 1TD

Monthly Drop-In Cafe

The second Tuesday each month, starting from 11th March 2025

11am – 1pm

Run by Yorkshire’s Brain Tumour Charity

Contact Rhiannon Witts ybtcsupport@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

St Lukes Hospital Dublin

Contact:

Avril O’Sullivan - Patient Support Services Administrator

Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4

Ph: +353 1 2310533  Fax: +353 1 2310555

Email: aosullivan@irishcancer.ie
Web: www.cancer.ie

Maggie’s Centre
Western General Hospital
Edinburgh

Monthly
First Tuesday at 7pm

No meetings in Jan or Jul

Contact Alice MacGregor
0131 334 3609

FORCE Cancer Centre

Royal Devon and Exeter Hospital

Barrack Road, Exeter

Devon EX2 5DW 

Quarterly

Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

University Hospital Galway

Contact:
Avril O’Sullivan - Patient Support Services Administrator
Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4

Ph: +353 1 2310533  Fax: +353 1 2310555

Email: aosullivan@irishcancer.ie
Web: www.cancer.ie

The PRTC
West Glasgow Carers Centre

Anniesland Cross

1561 Great Western Road

Monthly Second Monday from 7pm - 9pm

Contact Sheena Muir
0141 942 4475

The Fountain Centre
St Lukes Centre
Royal Surrey Hospital
Egerton Road
Guildford
GU2 7XX

Monthly Second Tuesday from
12 noon to 3pm

Contact Anne Wittle
01252 834784

Sussex Brain Tumour Support Group

Monthly 2nd Tuesday from 7pm to 9pm

Please contact either Jill Collins 01444 243492 or Charlotte Tripp 01273 412519 (after 7pm) to confirm your attendance and where to meet.

Denby Dale Library
Wakefield Rd,
Denby Dales
Huddersfield
HD8 8RX

Starting 20th February 11am – 1pm

Run by Yorkshire’s Brain Tumour Charity

Contact – ybtcsupport@yorksbtc.org.uk

Hive Cafe,
46 John William St,
Huddersfield
HD1 1ER

Second Thursday of each month 11am – 1pm

Run by Yorkshire’s Brain Tumour Charity

Contact – ybtcsupport@yorksbtc.org.uk

Crafty Cat Events
272 Hull Road
Anlaby Common
Hull
Hu4 7RR

Monthly Drop In Cafe

The first Tuesday of every month 11am – 1pm

Run by Yorkshire’s Brain Tumour Charity

Contact Natalie Mawson – natalie@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

Maggie’s Centre
St James’s University Hospital
Alma Street
Leeds
LS9 7BE

The third Friday of each month 10:30am – 12:00pm

Run by Yorkshire’s Brain Tumour Charity

Contact David Grant-Roberts, Chris, & Dawn Cook –ybtcsupport@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

Lincolnshire Brain Tumour Support Group

Dates vary, check website for details

The group is open to anyone diagnosed with a Primary Brain Tumour either benign or malignant and their partners and carers.

Patients should be resident in Lincolnshire and/or treated at United Lincolnshire Hospital Trust (ULHT)
www.lbtsg.co.uk

St Thomas Hospital
Richard Dimbleby Centre
Second Floor
Lambeth Palace Road
London

Monthly

First Monday 1.30pm – 3 pm

Contact Barbara - 0207 188 5918

The Resource Room
Bloomsbury Healthcare Library
Bonham Carter House
52 Gower St, London

Monthly First Tuesday every month, 6pm - 8pm.

Support group for low-grade glioma patients, family and friends.

Contact Emma Townsley or Orla McKee, Neuro-Oncology Clinical Nurse Specialists, on 0207 3918833

Big C Cancer Support & Information Centre
Norfolk & Norwich University Hospital
Colney Lane
Norwich
NR4 7UY

Monthly

Last Friday each month

11:00am - 12:30pm

Contact Big C Centre - 01603 286112

Oncology Nurse Specialist - 01603 286171

For more information, click here.

5 Abingdon Road
Didcot
OX11 9Bl

Quarterly meetings for children with a brain or spinal tumour and their families.  (Information day, Fun Day, Pantomine, Adolescent weekend)

Run by Friends of Oscar
Contact Carol - 01235 816310
carolharrison@utdsl.com

Massarella, Park Lane
41/42, Meadowhall Centre,
Sheffield
S9 1EL

Monthly Meetup

The first Monday of every month 11am – 1:00pm

Run by Yorkshire’s Brain Tumour Charity

Contact Leigh Robinson –ybtcsupport@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

Weston Park Cancer Charity
Whitham Rd,
Broomhall,
Sheffield
S10 2SJ

Weekends Meetup
10:00 AM – 11:30 AM, in 2025 : 8th Feb, 5th Apr, 7th Jun, 2nd Aug, 4th Oct, 6th Dec

Run by Yorkshire’s Brain Tumour Charity

Contact Leigh Robinson –ybtcsupport@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

Hamar Centre

Royal Shrewsbury Hospital

Mytton Oak Road
Shrewsbury SY3 8XQ

Quarterly

Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

Tesco Community Room

Tesco Hanley

Clough Street

Hanley
Stoke-on-Trent

Staffordshire ST1 4LS

Quarterly

Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

Coton Centre
Comberford Road
Tamworth
B79 9AA

Monthly First Monday of every month from 11am to 1pm

Poppy Fields Special Mummies and Daddies.   Call Lisa Guilder on 07830 302622 or email lisa.guilder@homecall.co.uk.


The meetings will be confidential and parents can share their stories, talk and listen to each other, and support one another.

The Cove

Royal Cornwall Hospital

Truro

Cornwall TR1 3LJ

Quarterly

Contact the Support Co-ordinator at Brain Tumour Support to confirm details of upcoming meetings - Call 01454 422701 or email support@braintumoursupport.co.uk

www.braintumoursupport.co.uk

Create Café
Burton Street
Wakefield
WF1 2EB

Monthly Drop In Cafe

The fourth Thursday of every month

10.30am – 12.30pm

Run by Yorkshire’s Brain Tumour Charity

Contact Heather Hale –ybtcsupport@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

Planet Food: The Real Junk Food Project
Southlands Methodist Church
97 Bishopthorpe Road
York
YO23 1NX.

Monthly Drop In Cafe

The first Thursday of every month

10.30am – 12.00pm

Run by Yorkshire’s Brain Tumour Charity

Contact – ybtcsupport@yorksbtc.org.uk

Open to all low and high-grade primary brain tumour patients, their carers and family members

Online meeting for those living (or being treated) in Yorkshire

Fortnightly Online Meetup

Run by Yorkshire’s Brain Tumour Charity

Contact Janet Turner –ybtcsupport@yorksbtc.org.uk

Information and referral through YBTC please required before attending.

Open to all low and high-grade primary brain tumour patients, their carers and family members

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