Supporters share their stories to raise awareness

1 min read

A brain tumour misdiagnosed as neck ache from video calls during homeworking, a young father’s new book and a lockdown romance are among the Brain Tumour Research supporter stories that have hit the headlines recently.

  Gary Nelson was diagnosed with an aggressive brainstem glioma in April 2020, after his symptoms were initially blamed on excessive laptop use while working from home. Gary’s story was featured in The Sun, MailOnline, The Mirror, and Metro.

BBC Radio Manchester interviewed Aria Nikjooy about his new book that he wrote to help explain his brain tumour diagnosis to his young son. You can read Aria’s story on our website. 

After finding love during lockdown, Ben Lindon was featured in the Hereford Times and Ledbury Reporter. Ben was diagnosed with an oligodendroglioma brain tumour in 2008 and has since completed numerous fundraising challenges for Brain Tumour Research.

Our Patron, Caprice Bourret, supported The Wanted’s Tom Parker after he announced he had been diagnosed with a glioblastoma multiforme (GBM). Caprice spoke to The Sun (see photo), and her words of support for Tom also appeared on MailOnline and The Mirror.

We thank all the supporters who share their stories with us to help raise awareness of brain tumours. If you have a story you’d like to share, please email our PR team on



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