This week, Brain Tumour Research was at the Senedd in Cardiff highlighting the need for better access to clinical trials and innovative treatments for brain tumour patients in Wales.
We brought together supporters Rhys Holmes and Debra Gibbon, who shared their personal stories – emphasising the gaps in treatment and research for Welsh patients.
Brain Tumour Research met with several Members of the Senedd to discuss findings which reveal that, while brain tumour incidence and mortality rates in Wales are comparable to England, Welsh patients face significant disadvantages when it comes to accessing trials.
Members of the Senedd heard how:
- A lack of clinical trials outside Cardiff means many patients miss out on life-extending opportunities, as travel can be prohibitive
- Awareness of available trials is low, among both patients and clinicians
- Cross-border complications between Wales and England result in eligibility discrepancies, leaving Welsh patients disadvantaged compared to their English counterparts
Thomas with Rhun ap Iorwerth, Leader of Plaid Cymru, and supporters Debra and Rhys
Brain Tumour Research is now urging the Welsh Government to take decisive action by:
- Expanding the number of brain tumour clinical trials available in Wales
- Improving infrastructure and awareness, so patients and clinicians can easily access up-to-date trial information
- Increasing investment in research into brain tumours, to position Wales as a leader in innovative treatment development
Rhys said: “For patients diagnosed with brain tumours, time is critical. We need equitable access to research and trials so no one in Wales is left behind.”
Debra added: “The heartbreak of this disease is only made worse when patients realise they have fewer options than others across the UK. That must change.”
Thomas Brayford, Policy and Public Affairs Manager at Brain Tumour Research, said: “Brain Tumour Research is committed to pushing for better support, investment and action, so that Welsh brain tumour patients are given the best possible chance at life-saving treatment and trials. Wales can become a hub for world-class brain tumour research and care.”
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