To mark the hand-in of the Back the 1 in 6 petition, the Neurological Alliance held a Parliamentary drop-in event at Westminster.
Brain Tumour Research is a member of the Neurological Alliance, which is a coalition of more than 100 organisations working together to transform outcomes for the millions of people in England with a neurological condition.
More than 19,000 people signed the Alliance petition calling for UK Governments to set up a Neuro Taskforce to address the key challenges identified through My Neuro Survey and improve services for people with neurological conditions.
The Taskforce, backed by all four UK Governments, would help to address common problems including health and care workforce shortages, growing waiting lists and barriers to accessing mental wellbeing support.
Georgina Carr, Chief Executive Officer of the Neurological Alliance, said that the global toll of neurological conditions exceeds that of all other conditions. She added: “It’s imperative we do a lot more to support those affected by neurological conditions.”
The Alliance also unveiled an artwork by Phoebe Bruce that celebrates the collective strength of the neurological community.
Yesterday’s event was attended by several MPs who pledged their support, including All-Party Parliamentary Group on Brain Tumours (APPGBT) officer the Rt Hon Hilary Benn. Also in attendance were supporters of the various partner organisations. Our Policy and Public Affairs Officer Thomas Brayford chatted with Rhys Holmes (pictured together), who recently helped Brain Tumour Research respond to the Wales Cross Party inequalities inquiry – having been diagnosed with a brain tumour aged eight. He shared his story at the event with the hope of improving awareness and outcomes for people with neurological conditions.
In joining with our Alliance partners, Brain Tumour Research is urging the Government to ensure that nobody is left languishing on a waiting list and that those with brain tumours and other neurological conditions can lead a life of dignity and hope.
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