UMBRELLA GROUPS... joining the fight against brain tumours, fundraising
for brain tumour research
Brain Tumour Research relies on the support of so many inspirational people, many of whom have been affected either personally
by a brain tumour or who have witnessed the pain and suffering of someone close to them. These wonderful people have set up
their own trusts under our umbrella in order to raise desperately needed funds for brain tumour research.
If you want to help by setting up your own Umbrella Group, please do not hesitate to contact the team on 01296 733011 or by
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Head 1st has been set up by Nicole Witts who, having been lucky enough to
just survive an undiagnosed big brain tumour, is committed to achieving:
* Awareness
* Information
* More fundraising for this awful illness
She is prepared to jump all hurdles to get there and make people aware of the
illness and its awful effects on individuals and families involved.
Read Nicole's Story...
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Lisa's Gift was set up by family and friends of Lisa Wray neé Russell after
losing her battle with a brain tumour on the 16th May 2009.
Lisa left behind her new husband Darren of 5 months, her three beautiful
children Alfie 6, Dazza 2 and Lucy 1, also her mum and dad (Alison and James)
and her sister Jane.
Lisa married Darren on the 13th December not knowing she had a brain tumour,
one week later on the 19th December after walking home from taking Alfie to
school Lisa suffered a massive seizure leaving her in hospital for two weeks so
tests could be done.
After two brain biopsies we were told Lisa had an Anaplastic Astrocytoma grade
3 to 4 inoperable tumour. Lisa was told chemo and radiotherapy could slow her
tumours growth and she could have a few years or a few month.
A few months was all Lisa was allowed and on Saturday 16th May 2009 at
1.10pm Lisa passed away at home in the arms of her husband, her mum and
dad and her sister while all her family and friends who had come to see her that
day were in the garden.
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Taylan Andrew Rawlinson was our beautiful seven year old boy who was sadly
takenaway from us on 19th August 2009. He was diagnosed with a very rare
incurable and inoperable brain tumour located in the brain stem called Diffuse
Intrinsic Pontine Glioma (DIPG) on 24th October 2008.
It was so frustrating over the 10 months after Taylan was diagnosed that no one
was able to give us any answers or provide that breakthrough we so desperately
needed. The price we had to pay was losing our beautiful and precious baby boy.
We will never go back to being a `normal' family again as Taylan is no longer with
us. We miss him so much and the pain will never go away - nor will he ever be
forgotten. But we feel we cannot allow this to continue and if one day an answer
or cure is found, whilst it will be too late for us it may be just in time for another
family. We need to start somewhere. So with the help of friends and family we
founded Taylan's Project in January 2010. |
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Umbrella Groups
